Life-Support Options For People With Serious Illness

Following are two links to life support options for people with serious illness and facing death.

Understanding the options that may be presented to you or your loved one is easier if you have the information ahead of time…when there is less chance for emotions to drive the decision.

PBS.org Frontline-facing death gives the reader guides to “Kinds of Life-Support Decisions” (Ventilators, Nutrition and Hydration, “Do Not Resuscitate” (DNR) Orders)  Including: “What to Know About Dying With Dementia” and “Family Conflict and Dementia”.

Eating and Not Eating as end of life approaches by Barbara Karnes, RN, end of life educator.  Her web site has tons of valuable information on matters concerning the dying process  (and see the video I have previously shared from Barbara Karnes).

Watch “Dementia Care Tips by Teepa Snow” on YouTube

Great advice when you become a caregiver.

Casey Kasem and Mama Jean: The Faces of Lewy Body Dementia | Jamie Brickhouse

http://www.huffingtonpost.com/jamie-brickhouse/lewy-body-dementia-casey-kasem_b_5343758.html?utm_hp_ref=entertainment&ir=Entertainment

Mama Jean’s mind was already gone, but her reflexes — the ones that declared, “Don’t mess with me, I’m in charge,” — were still firing. It was the kind of moment — a brilliant spark of lucidity — that crystalizes the essence of a person after their mind has been hijacked.

Open, honest, heartfelt article. Click the above link to read more.

I was in tears before I finished reading this article because of the similarities with our experience with Mom. I still find it difficult to understand how it is that the medical community does not know more about Lewy Body Dementia and how to recognize it.

I find myself missing my mom more now when we are together than in the past when we were apart. The sadness and grief are overwhelming.

I hope beyond hope that the author, Jamie Brickhouse, is correct in thinking Casey Kasem will give a face to LBD and therefore the much needed awareness.

♥We are all just walking each other home♥

New LBD Resource Available Now from the Lewy Body Dementia Association

  LBDA has developed two tools to help patients, caregivers and health professionals quickly and easily identify symptoms that are required for a diagnosis of Lewy body dementia (LBD).

Click http://www.lbda.org to download the LBD Diagnostic Symptoms Checklist
This checklist is specifically designed to
aid in reporting those symptoms which are involved in diagnosing dementia with Lewy bodies (DLB) the most undiagnosed form of Lewy body dementia.
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Click http://www.lbda.org to download the Comprehensive LBD Symptoms Checklist
This expanded checklist includes symptoms required for the diagnosis of LBD, as well as many other symptoms common in LBD that may appear as the disease progresses.
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A special thanks to the Lewy Body Dementia Association http://www.lbda.org for these very helpful check lists.

In Caregiving, Anxiety Can Be Contagious

http://www.agingcare.com/Articles/caregiver-anxiety-stress-contagious-156605.htm?utm_source=May+2013+Newsletter%3A+&utm_campaign=May+2013+Newsletter&utm_medium=email

This is a wonderful article on reducing anxiety in the caregiver as well as the loved one receiving the care. I think this goes for children as well because they are very in tune with our body language.  Stress and Anxiety are harmful to us in so many ways. Check this article out, you may just find a new idea to try.

We are all just walking each other home…author unknown

LBD & Hallucinations “…are YOU real?”

Everything I have read about hallucinations experienced by people with Lewy Body Dementia has said that they generally see people and animals and do not usually feel fear or threatened by what they see. That use to be true for my Mom but things seem to be changing.  Lately she has been seeing people in her home… her deceased parents and others who come and go. It is the “others” that are cause for concern. Dad called me one night so Mom could talk to me when she was overcome with fear. She was seeing a man in her apartment and was sure he wanted to “take her out”. No amount of reassurance from Dad or myself could convince her that she was safe. She was completely terrified and crying uncontrollably. By the time I got to their home she had begun to calm down and talk about it. It was only then that she realized there was no one there but the 3 of us.

Has anyone had a similar experience? Does anyone have any advice on how they were able to convince their loved one that what they are seeing is not real or harmful?

I can’t even imagine how scary these experiences must be for my Mom. The last time Dad was dealing with this and trying to help Mom understand she was safe, her response was…“are YOU real?”

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Courtesy of Lewy Body Dementia Association
For more info: http://www.lbda.org

Next …. continued Finding In-home Caregivers, Care For The Caregiver & Support Groups